University of Guam Center for Excellence in Developmental Disabilities Education, Research & Service 2015 Annual Report July 1, 2014 - June 30, 2015 ÒIndividual smiling after bagging groceriesÓ 2 ÒGuam CEDDERS Advisory Council 2015Ó Lynn Tydingco was re-elected as Chairperson and Leone Rohr was elected as Vice Chairperson of the Guam CEDDERS Advisory Council during the June 5 quarterly meeting. Seated left to right are Ms. Tydingco, Mrs. Rohr, and Hank Parker. Standing left to right are Josie Guerrero, Maria Bontogon, Evie Manibusan and Linda Rodriquez. Self-Advocates & Family Representatives Maria Bontogon Bill Fuppul  Josephine Guerrero Gian Magana Tom Manglona Leone Rohr Erlinda ÒLynnÓ Tydingco Agency & Organization Representatives Rosanne Ada, Director Guam Developmental Disabilities Council Elaine Faculo-Gogue, UOG Student Support Services & EEO Yolanda Gabriel, Assistant Superintendent, Special Education, Guam Department of Education Linda Rodriguez, Human Services Program Administrator Bureau of Social Services Administration (BOSSA), Department of Public Health & Social Services Harold Parker, J.D., Director Guam Legal Services Corporation - Disability Law Center Marcelene Santos, J.D., Public Guardian, Office of the Public Guardian - Supreme Court of Guam Ben Servino, Director Department of Integrated Services for Individuals with Disabilities About the Cover To help commemorate the 25th Anniversary of the passage of the Americans with Disabilities Act (ADA), Guam CEDDERS produced a 10-poster series featuring successful individuals with disabilities. Shown on the cover is Gian Magana, Self-advocate, and Guam CEDDERS Advisory Council Member. To view the full set, please visit the Guam CEDDERS website at www.guamcedders.org. 3 Table of Contents 2 | Guam CEDDERS Advisory Council 4 | About Guam CEDDERS 6 | Interdisciplinary Pre-Service Preparation; Continuing Education; Community Services: Training 12 | Community Services: Technical Assistance, Model Services, Demonstration Services 16 | Research/Evaluation; Information Dissemination 20 | Collaborating Partners 23 | The Guam CEDDERS Team 23 | Funding Erlinda ÒLynnÓ Tydingco, Guam CEDDERS Advisory Council Chairperson, facilitated the ÒUpdates from Advocates on GuamÕs Disability Agenda ForumÓ held at the Jesus and Eugenia Leon Guerrero Building at the University of Guam on December 3, 2014. GuamÕs Disability Agenda is a key source used in Tri-Agency Work Plans, as well as Guam CEDDERSÕ Core Grant planning. 4 About Guam CEDDERS Mission Statement In partnership with individuals with disabilities and their families, agencies, organizations, and service providers, Guam CEDDERS creates pathways that enhance, improve, and support the quality of life of individuals with developmental disabilities and their families. Manhihita HumatÕsa I Tellai - Building Bridges Together The second year of a five-year cycle of the Guam CEDDERS Core grant began on July 1, 2014 and ended on June 30, 2015. The Guam CEDDERS Advisory Council, which meets quarterly to ensure that the Core goals and objectives are addressed, provides input on emerging issues, trends, and concerns faced by individuals with disabilities and their families. Other Councils that fall within the Guam CEDDERS framework that play an integral role in determining the path taken by various projects in the organization include the: ¥ Guam System for Assistive Technology Advisory Board ¥ Guam Early Hearing Detection and Intervention Advisory Council ¥ Project Tinituhon (GuamÕs Early Childhood Comprehensive System) Strategic Management Team Guam CEDDERS staff were also members of numerous Councils, Boards, and Committees including: ¥ Guam Early Learning Council ¥ Interagency Coordinating Council ¥ Project Bisita I Familia Advisory Committee, Department of Public Health & Social Services (DPHSS) ¥ Guam Developmental Disabilities Council ¥ Pacific Islands Microcredit Institute Board ¥ State Rehabilitation Council ¥ Guam Behavioral Health and Wellness Center Advisory Council ¥ Guam Advisory Panel for Students with Disabilities (GAPSD) ¥ Guam State Rehabilitation Advisory Board ¥ Guam Legal Services Corporation - Disability Law Center, Protection & Advocacy for Developmental Disabilities Advisory Council ¥ Project Kari–u Community Evaluation Advisory Team, DPHSS ÒGuam CEDDERS TeamÓ 5 Core Functions This 2015 Annual Report features Guam CEDDERS activities conducted during the period of July 1, 2014 Ð June 30, 2015. Aligned with the CenterÕs Five-Year Work Plan, the activities are reported by the Guam CEDDERSÕ Core Function clusters, as follows: ¥ Interdisciplinary Pre-Service Preparation; Continuing Education; Community Services: Training ¥ Community Services: Technical Assistance, Model Services, Demonstration Services ¥ Research/Evaluation; Information Dissemination Activities and projects under the Guam CEDDERSÕ Core Functions are also aligned with the University of GuamÕs Core Commitments of: ¥ Enhancing Academic Quality, Enrollment Growth, Retention, Institutional Visibility ¥ Promoting the Land-Grant Mission Community Engagement ¥ Strengthening Institutional Efficiency and Effectiveness Trish Billen, Guam CEDDERS Social Work Practicum student, was honored during the University of Guam Social Work Pinning Ceremony held on May 21, 2015 at the University of Guam College of Liberal Arts & Social Sciences Lecture Hall. In attendance were (L-R): Bonnie Brandt, Guam CEDDERS Training Associate; Trish Billen, Practicum Student; Florina Anson, TrishÕs mother; Yuleen Nanpei Perman, TrishÕs cousin; Bernadette Shisler, Guam CEDDERS Family Interviewer; and Mariles Benavente, Guam CEDDERS Cultural & Linguistic Competence Consultant. 6 Interdisciplinary Pre-Service Preparation; Continuing Education; Community Services: Training ÒGuam LEND trainees got in touch with nature, learned more about cultural values and teamwork at the University of Hawaii Ka Papa PunaluÔu LoÔi (taro patch) on March 22, 2015.Ó 7 On October 28, 2014 John Acfalle (standing pointing to screen) , a student in the ÒHistorical and Contemporary Perspectives of DisabilityÓ class, shared his experiences of bringing two individuals, who grew up in an institutional setting, into his family home. His video depicts the advantage and normalcy of small family settings over group home housing. Engaged in the presentation (L-R): Leilani Lafaele, John Acfalle, Tia Pereda , and Sherry Guerrero. Donna McNear, University of Massachusetts-Boston Adjunct Faculty and Pacific VIP Regional Consultant, conducted a practicum site visit with Guam-based Pacific VIP scholars. Pictured here at Price Elementary School are (L-R): scholars Darlene Taimanglo and Diane Artero, Professor Donna McNear, and scholar Erica Acfalle. The site visit took place during the week of April 27 through May 1, 2015. Visual Impairment Training Under the Core Function of Interdisciplinary Pre- Service Preparation, efforts continued to finalize the completion of the Pacific Vision Instruction Project (Pacific VIP), a US Department of Education, Office of Special Education Programs (DOE OSEP)-funded personnel preparation grant to increase the pool of highly qualified professionals educating students with visual impairments. While the majority of the 19 Pacific scholars, representing American Samoa, the Commonwealth of the Northern Mariana Islands, Guam, and the Federated States of Micronesia, had completed their degree requirements, several needed extra time and practicum supervision to ensure that all program requirements were met to not only meet their graduate program requirements for a MasterÕs Degree in Teacher of Students with Visual Impairments (TVI), but also earn credentials in Orientation and Mobility (O&M). Guam CEDDERS, in partnership with University of Massachusetts-Boston, the degree granting institution, continues to support the regional scholars in completing their program requirements in 2015. Disabilities Studies Course The Disabilities Studies course series were piloted and offered this year through the University of Guam. What was especially significant this year was the completion of the first internship in this discipline by a University of Guam senior majoring in social work. Efforts continue to facilitate the process to have this series be approved as a three-credit course for inclusion as an option to meet an undergraduate general education requirement. Self-Advocacy Training The Self-Advocacy Workshops, offered over the past six years, were again supported by Guam CEDDERS, in partnership with the Self Advocates in Action (Si–A) organization and the Guam Developmental Disabilities 8 Council. This workshop assists persons with disabilities to Òfind their own voicesÓ through the development of communication and assertive skills. One section of the course, held in May, focused on the development of skills needed for college life. In addition, a very important component of this workshop is the training of self-advocates to be the leaders in teaching this workshop. Guam CEDDERS is pleased to have played a key role in not only developing the curriculum for the course, but in providing the mentorship for self- advocates who now fully lead and coordinate the workshops. Completers of the workshop included individuals with disabilities serving on community boards and councils. LEND Under the interdisciplinary training, core function, three trainees completed the fourth cycle of the Maternal Child Health Leadership Education in Neurodevelopmental and Related Disabilities (MCH LEND) program, offered through a partnership with the University of Hawaii John A. Burns School of Medicine LEND Program. Trainees from the disciplines of audiology, early childhood special education, and family partnerships completed the 300-hour program that honed their skills to assume leadership roles in this specialized area. Speech Pathology Training An exciting new development that took place towards the end of this reporting period was the awarding of federal grant support in May for a graduate program to train speech-language pathologists from the Pacific region. A DOE OSEP personnel preparation grant was awarded to San Jose State University, in partnership with Guam CEDDERS, to support 20 scholars from the region to help meet the critical shortage of professionals in this specialized discipline. Project EPICS (Educating Pacific Island Clinicians in Speech-Language Pathology) Ò(L-R): Trish Billen, Disability Studies and Social Work intern, role play with fellow facilitator Maria Bontogon, a UOG undergraduate student and Guam CEDDERS Advisory Council member, and participant Zenaida Del Mundo to demonstrate the more formal interactions with post secondary faculty when disclosing a disability and needing to request accommodations during the ÒSelf-Advocacy WorkshopÓ held on May 5, 2015.Ó 9 is a five-year graduate program, delivered through a combination of online and on-site classes, leading to a masterÕs degree that will use effective and scientifically-based curricula and pedagogy to prepare personnel who will improve outcomes for students with disabilities, and foster appropriate access to and achievement in the general education curricula. Recruitment efforts began as soon as the notification of award was received, with the offering of the first course slated to begin in Fall 2015. ÒGuam LEND trainees received their Leadership Education in Neurodevelopmental & Related Disabilities (LEND) Certificate of Completion on May 5, 2015. Shown here are (L-R): Carla Torres, Guam CEDDERS LEND Coordinator, Trainees Leone Rohr, Suzanne McManus, Ph.D., and Renee Koffend, Au.D., and Leolinda Parlin, University of Hawaii LEND Program Co-Director.Ó ÒPepnet2 staff (standing L-R): Van Nguyen, Mary Morrison, and (seated) Cindy Camp, shared information relating to technology available to persons who are deaf/hard of hearing during the ÒBuilding State Capacity to Address Critical Issues in Deaf Education: Transition from Secondary Education to Postsecondary OptionsÓ conference on May 22, 2015. Guam CEDDERS assisted in the facilitation of this event.Ó 10 ÒGuam Department of Education Special Education Transportation drivers & supervisors gathered to receive their certificates after completing National Highway Traffic Safety Administration curriculum for Transporting Students with Special Needs & Emergency Evacuation on September 5, 2014.Ó ÒDr. Robert Corso (standing), consultant from the Center on the Social and Emotional Foundations for Early Learning (CSEFEL), talked about intervention at the top of the pyramid during training with early childhood service providers on Early Childhood Mental Health Consultation held on October 20-22, 2014.Ó Early Childhood Training Guam CEDDERS provided training for early childhood service providers on ÒSupporting the Social Emotional Development of Infants & Toddlers Through Family Coaching.Ó Training through the Center on the Social and Emotional Foundations for Early Learning centered on ÒPyramid Model LeadershipÓ and Developmental and Behavioral Screening training for child care providers. A ÒPhysicianÕs Orientation Meeting on the Island- wide Developmental and Behavioral ScreeningÓ was also held, through Project Tinituhon, GuamÕs Early Childhood Comprehensive Systems 11 grant from the US Department of Health & Human Services, Health Resources & Services Administration. Transportation Safety Training Bus drivers from the Guam Department of Education and the paratransit and public transit systems were trained on safety and proper securement of wheelchairs and customer service with people with disabilities. The training offered to the bus drivers provided them with certificates through the Community Transportation Association of America. PBIS Training Since the establishment of the organization, Guam CEDDERS has partnered with the Guam Department of Education on numerous initiatives. This partnership continued with Guam CEDDERS providing technical assistance and training to promote Positive Behavioral Interventions and Supports (PBIS) in the public school system. A key component addressed during this reporting period is parent involvement. Parents and guardians participated in a training facilitated by Guam CEDDERS to increase their understanding of PBIS, increase their knowledge of the goals of PBIS, and provide information on applying PBIS parenting tools. Regional Special Education Training As in previous years, Guam CEDDERS continued providing technical assistance and training related to the education of students with disabilities in the Commonwealth of the Northern Mariana Islands, the Federated States of Micronesia, and the Republic of Palau. Interdisciplinary Pre-Service Preparation; Continuing Education; Community Services: Training ¥ CNMI Child Care and Development Fund Technical Assistance and Training ¥ CNMI PSS IDEA Part B & C Training ¥ Disabilities Studies Courses ¥ FSM Project Realize, Empower, and Apply Locally (REAL) IV ¥ Guam CEDDERS Core Grant ¥ Guam DOE Character Education Positive Behavioral Interventions and Supports (PBIS) ¥ Pacific Vision Instruction Project (Pacific VIP) ¥ Palau Part B 2014 ¥ Project Tinituhon Phase III MCH-SECCS/Building Health Through Integration ¥ Self-Advocacy Workshops ¥ Transit Training ¥ University of Hawaii MCH LEND Program ÒNieves Flores, Ed.D., Guam CEDDERS Consultant, conducted a monthly Positive Behavior Interventions & Support (PBIS) training for middle school personnel at GSAT. Participants were provided on-going training in using data for decision-making and writing precision problem statements.Ó 12 Community Services: Technical Assistance, Model Services, Demonstration Services ÒAndrew Gumataotao (right), GSAT Student Office Assistant, demonstrated the use of an assistive technology device that reads text out loud during the Annual Assistive Technology Fair on March 7, 2015.Ó 13 ÒParticipants of the ÒUpdate from Advocates on GuamÕs Disability Agenda ForumÓ held on December 3, 2014 posed for a group photo in the atrium of the Eugenia and Jesus Leon Guerrero School of Business and Public Administration Building, University of Guam.Ó Disability Agenda/Policy Maker Awareness The ÒUpdate from Advocates on GuamÕs Disability Agenda ForumÓ was held on December 3, 2014. The purpose of the forum was to keep community leaders abreast of concerns of great importance to people with disabilities and their families. Thirty-seven policy makers, including senators and legislative staff, staff from the Office of GuamÕs Washington Delegate, agency directors and representatives, gathered to listen to the concerns, expressed by self-advocates and their family members, on systemic, funding, and general challenges as well as specific examples of frustrations of daily living that are a result of insufficient support. The developed product titled: Ò2014 Updates from Advocates on GuamÕs Territorial Agenda Update on DisabilitiesÓ report, which outlined information gathered during the May 2014 forum, was disseminated during this event. OSEP Visit A major activity under this Core Function of Community Services: Training was the hosting of the OSEP Pacific Meeting on August 11-15, 2014. Over 60 representatives from the six Pacific entities including American Samoa, the Commonwealth of the Northern Mariana Islands (CNMI), Federated Sates of Micronesia (FSM), Guam, the Republic of the Marshall Islands (RMI), and the Republic of Palau (ROP) were in attendance to hear updates from Dr. Melody Musgrove, OSEP Director, and her colleagues. The five-day meeting highlighted OSEPÕs on-site State Systemic Improvement Plan (SSIP) implementation support designed to help ensure that states/entities develop high quality Phase 1 SSIPs submitted in April 2015. Early Childhood Policy Summit Guam CEDDERS facilitated a two-day ÒEarly Childhood Policy Summit - Setting the Early Childhood Course for 2015Ó on December 9, 2014 and January 20, 2015. A wide range of stakeholders, including Guam Early Learning Council (GELC) members, policy leaders for education and health, administrators, and program directors from GuamÕs Early Childhood Programs, and parents attended this summit which provided an opportunity for members of GELC and Project Tinituhon (The Beginning) Strategic Management Teams to update the CouncilÕs five key areas. These areas include: Health, Social Emotional/ Mental Health, Early Care and Education, Parent Education and Family Support, and Sustainability. Assistive Technology ÒCan DoÓ The Guam System for Assistive Technology (GSAT) hosted the Annual Assistive Technology (AT) Fair on March 7, 2015 & the 21st Annual AT Conference on March 27, 2015. The theme of this much-anticipated annual event, ÒMaking It Work,Ó was reflective of the ÒCan DoÓ spirit of the stakeholders. Over 120 14 participants attended the conference which featured speakers from GSAT, GuamÕs Protection & Advocacy Program under Guam Legal Services Corporation Ð Disability Law Center, the Department of Integrated Services for Individuals with Disabilities, and the Guam Department of Education, Division of Special Education. The Fair was held at the Micronesia Mall and was well attended by the community at large. AT Demo & Loan Programs Keeping the community informed on emerging technologies is an important mission of the Guam System for Assistive Technology (GSAT) Center. A demonstration center that showcases devices, both low-tech and high-tech, serves as a place for Guam residents to obtain information on various devices, try and potentially borrow items before deciding to invest in a purchase. For persons who may have financial issues, GSAT, in partnership with the Pacific Island Microcredit Institute, through two loan programs, the Guam Options for Alternative Loans for Assistive Technology (GOAL-AT) and the Get Guam Teleworking (GGT) Programs, offers low-interest loans for qualified individuals. Remote Interpreting/Capturing To assist in community program access, GSAT also facilitated a live demonstration of ÒVideo Remote Interpreting and Captioning in Real Time CaptioningÓ conducted with over 50 participants. Due to GuamÕs remote location, the Video Conferencing technology has great potential in providing real-time language access supports, particularly for members of the deaf community due to a lack of locally-based sign language interpreters. Transition Supports in Deaf Ed In collaboration with PEPNet2, Guam CEDDERS assisted in the facilitation of a two-day meeting on ÒBuilding State Capacity to Address Critical Issues in Deaf Education: Transition from Secondary Education to Postsecondary OptionsÓ held in Honolulu, Hawaii. This technical assistance projectÕs mission is to increase the education, career and lifetime choices available to individuals who are deaf or hard of hearing. Representatives from the Pacific entities were brought to Honolulu to attend this highly informative meeting. It was the first time for most participants to see adults who are deaf or hard of hearing share their stories and accomplishments, several with college degrees and employment and career successes that go far beyond what is typically available for deaf residents in their island home communities. ÒThe Guam DOE Division of Special Education sponsored a reception for participants of the OSEP Pacific Meeting for Regional Special Education (SpEd) officials in the Hall of Governors at Adelup on August 11, 2014. (Left to right): Vince Leon Guerrero, Guam GovernorÕs Education Policy Consultant; Arthur Albert, FSM Special Services Division Chief; Helen Sengebau, ROP SpEd Coordinator; Charles Kniseley, OSEP State Contact for Guam; Ruthiran Lokeijak, RMI SpEd Director; Dr. Melody Musgrove, OSEP Director; Genee Norbert, OSEP State Contact for FSM and ROP; Judith Gregorian, OSEP MSIP Associate Division Director; Yolanda Gabriel, Guam Assistant Superintendent for SpEd; Suzanne Lizama, CNMI SpEd Director; Robin Palacios, CNMI Part C Coordinator; and Cathy Tydingco, Guam Part C & Early Childhood Special Ed Coordinator.Ó 15 Home Visitation Guam CEDDERS continued to provide supports through technical assistance and training through contracts with the Guam Department of Public Health and Social Services (DPHSS). Project Bisita I Familia, a home visiting program for at risk children and their families, was supported through training of their personnel, as well as through technical assistance in program development and reporting. Infant Mental Health/Cultural & Linguistic Competence, and Information Access Project Kari–u, an early childhood mental health program for infants and young children birth through eight, was provided with training and program development support, with an additional component related to ensuring cultural and linguistic access. One of the activities under this project was the ÒAddressing Disparities through Organizational Cultural and Linguistic CompetenceÓ Conference that featured Tawara Goode and Vivian Jackson from Georgetown UniversityÕs University Center on Developmental Disabilities. Also in collaboration with DPHSS, Guam CEDDERS was contracted to facilitate the development of a three-year plan ÒNo Wrong Door PlanÓ to improve access to information for long-term services and supports for all persons. Alternate Assessment Through the National Center and State Collaborative (NCSC), Guam CEDDERS provided technical assistance and training for the Guam Department of Education and CNMI Public School System on the system of supports for the development and implementation of the NCSC Alternate Assessment based on Alternate Achievement Standards (AA-AAS) for students with significant cognitive disabilities in Grades 3-8 and 11. A critical component of the AA- AAS system included various NCSC curriculum and instructional resources to help develop lesson plans for students with significant cognitive disabilities. Community Services: Technical Assistance, Model Services, Demonstration Services ¥ California State University, Northridge Contract - PEPNet ¥ GuamÕs Early Childhood Home Visiting Program: Project Bisita I Familia ¥ Guam System for Assistive Technology ¥ Health Resources and Services Administration (HRSA) Guam Early Hearing Detection & Intervention (GEHDI) - Phase IV & V ¥ National Center & State Collaborative (NCSC) Project ¥ No Wrong Door Program (NWD) ¥ Pacific Island Microcredit Institute (PIMI) Get Guam Teleworking (GGT) Program ¥ Pacific Island Microcredit Institute (PIMI) Guam Options for Alternative Loans - Assistive Technology (GOAL-AT) ¥ Project Kari–u - Cultural & Linguistic Competency ¥ Project Kari–u - Technical Assistance & Training ÒRenee Koffend (standing), AuD., demonstrated the use of a device that allows Evelyn Duenas to view her inner ear during the Annual Assistive Technology Fair on March 7, 2015.Ó 16 Research/Evaluation; Information Dissemination ÒMr. Jon Fernandez (standing), Guam Department of Education Superintendent, gave welcoming remarks at the REL Pacific Guam Research Alliance Parent Panel Session on Family Engagement held on May 7, 2015 at Liguan Elementary School.Ó 17 ÒMr. Quansheng Song, database consultant, conducted a site visit on May 20, 2015 with Guam CEDDERS and Project Kari–u staff to further refine their database and begin work on generating a set of standardized reports. Clockwise (L-R): Dr. Lilli Perez, Clinical Director; Quansheng Song, Database Consultant; Bonnie Brandt, Guam CEDDERS Training Associate; Joseph Mendiola, Guam CEDDERS Data Coordinator; Tammy Bamba, Project LAUNCH Staff; Pauline Camacho, Project Kari–u Lead Family Partner; Toni Latson, Project Kari–u Wrap Coordinator; and Jobeth Aquino, Project Kari–u Wrap Coordinator.Ó Pacific Research Guam CEDDERS partnered with the Mid-continent Research for Education and Learning (McREL) in facilitating the Guam Research Alliance for Family and Community Engagement panel session to increase awareness of strategies utilized by selected schools to engage family; increase awareness of familiesÕ perception of their level of engagement in the schools; and to increase awareness of barriers, as perceived by families, preventing engagement in their childrenÕs education. Families were asked to share their thoughts on how they were involved in their childrenÕs education, examples of positive experiences or challenging areas, and ways in which schools could make parents feel more welcomed. McREL also provided supports on action planning and application of methods for ensuring engagement. Linking Evaluation to Program Improvement Accessing information to use for project evaluation and to make informed decisions for program improvements continued to be a goal for two key activities facilitated by Guam CEDDERS relating to systems development. One is the support and further enhancement of the Guam ChildLink Data system and the other is Project Kari–u Evaluation. The Guam ChildLink-EHDI data system was initiated by Guam CEDDERS through the Guam Early Hearing Detection and Intervention (Guam EHDI) project 11 years ago to monitor the tracking and surveillance of infants receiving hearing screening before leaving the facility of their birth. Since then, the system has experienced tremendous growth and has expanded to include ChildLink Ð Bisita and ChildLink Kari–u, the web-based data tracking, monitoring, and reporting system for Project Kari–u. Although all three systems are separate and tailored to their specific program needs, there is a level of integration that is being developed for the three Guam ChildLink data systems. In addition, the three systems serve as a framework for the development of GuamÕs Early Childhood Integrated Data System (ECIDS). This is a huge accomplishment for Guam, but it is only the beginning of what is being planned for the interoperability of the systems. As technology advances and data needs continue to grow, there are plans for the continued enhancement of Guam ChildLink to ensure functionality and connectivity. This development, will in turn, provide needed support to improve overall development and improvements to GuamÕs Early Childhood Comprehensive System. 18 Infant Mental Health Data For over three years, Guam CEDDERS collected information about the children and families served by Project Kari–u, GuamÕs Early Childhood System of Care for young children with social, emotional, and behavioral challenges. Through a contract with DPHSS, Guam CEDDERS has served as the project evaluator and to date has collected descriptive information on over 300 children and families. The evaluation results demonstrate that despite numerous challenges, the children and families served by Project Kari–u are experiencing success and feeling positive about the services they are receiving. Results show promising outcomes for children and families after six months in the program. Developed Products The development of products and Information dissemination is a core function that received much attention during this reporting period. Promoting increased awareness of early childhood development and services and supports for people with disabilities were goals of the following products developed during this period: ¥ I Tellai, I LinaÕla-ta, & I MandikikiÕ Quarterly Newsletters ¥ Newborn Hearing At-A-Glance Progress Report ¥ ADA 25th & IDEA 40th Anniversary Poster Series ¥ Guam EHDI Poster & Family Support Group Brochures ¥ Project Kari–u Evaluation Reports ¥ Project Launch Environmental Scan Report ¥ Assistive Technology Tool Kits for the Guam Election Commission ¥ Guam Early Learning Guidelines for Children 3 to 5 Years ¥ Ò2014 Updates from Advocates on GuamÕs Territorial AgendaÓ ¥ Home Visiting Program Brochures, Posers, TV & Radio Ads & Website ¥ Video Productions: ..ÒFaces of AutismÓ Ð The Blas Family & The Darlow Family ..ÒVisitabilityÓ ..ÒTa Fan Acomprendi (Understanding Each Other): Tips for Communicating with Individuals with Disabilities Research/Evaluation Information Dissemination ¥ CDC: Guam EHDI - IS Guam Child Link ¥ Mid-continent Research for Education and Learning (McREL) Pacific ¥ Project Kari–u - Evaluation ¥ Project LAUNCH (Linking Actions for Unmet Needs in ChildrenÕs Health) ÒADA 25th Anniversary poster: More than Our Disability.Ó 19 Faces of Autism Video Series The Blas family (left) and Kira Darlow (right) are featured in the ÒFaces of AutismÓ video series. Guam CEDDERS developed 29 new products this fiscal year. A total of 30,497 of all products developed were disseminated during this Fiscal Year. These developed products and more are available for download at the Guam CEDDERS website: www.guamcedders.org ÒFront covers of I LinŒÕlŒ-ta, I Tellai, I MandikikiÕnewsletters, Gaum EHDI poster, and Guam EHDI Progress Report.Ó 20 Collaborating partners Collaborating Universities & Colleges California State University, Northridge Post- Secondary Education Program Network for Students & Adults Who Are Deaf/Hard of Hearing (PEPNET 2) Georgetown University Center for Child and Human Development National Technical Assistance Center for ChildrenÕs Mental Health Guam Community College Johns Hopkins University Bloomberg School of Public Health, Hopkins Center for Health Disparities Solutions San Jose State University Speech Pathology Program University of Hawaii John A. Burns School of Medicine Maternal & Child Health Leadership Education in Neurodevelopmental and Related Disabilities (LEND) University of Massachusetts - Boston Northeast Regional Center for Vision Education University of Minnesota National Center on Educational Outcomes University of South Florida Department of Child and Family Studies Utah State University National Center on Hearing Assessment & Management (L-R): Robert McCulley, Director, Northeast Regional Center for Vision Education/ Institute on Community Inclusion, School for Global Inclusion and Social Development, University of Massachusetts Boston, and June De Leon, Guam CEDDERS Associate Director and Project Director for the Pacific Vision Instruction Project, deliver their part of the Guam CEDDERS workshop presentation at the 2015 Pacific Rim Conference on Disabilities. The presentation, titled ÒMaking Connections that Improve Lives Across the Life Span,Ó took place on May 18 in Honolulu, Hawaii. Seated at right is Elaine Eclavea, Guam CEDDERS Consultant, who shared information on the development of GuamÕs Early Childhood Comprehensive System. 21 On March 3, 2015, Lt. Governor Ray Tenorio, Acting Governor, signed a proclamation declaring the month of March as Developmental Disabilities Awareness Month on Guam. Attending the event were representatives from the Guam Tri-Agency, comprised of the Guam Developmental Disabilities Council, Guam Legal Services Corporation - Disability Law Center and University of Guam CEDDERS. Also attending were members of GuamÕs state recognized self-advocacy group Si–A: Self-Advocates in Action, agency representatives from the Department of Integrated Services for Individuals with Disabilities, Division of Vocational Rehabilitation, and Division of Support Services. Guam Collaborating Partners Agency for Human Resources Development Alee Shelter Bank of Guam Catholic Social Services Center for Independent Living Council Department of Defense Educational Activity Department of Youth Affairs Guam Behavioral Health and Wellness Center Guam Child Care Development Association Guam Coalition Against Sexual Assault & Family Violence Guam Department of Education Guam Department of Homeland Security - Office of Civil Defense Guam Department of Integrated Services for Individuals with Disabilities Guam Department of Labor Guam Department of Public Health & Social Services Guam Department of Public Works Guam Department of Vocational Rehabilitation Guam Department of Youth Affairs Guam Developmental Disabilities Council Guam Early Learning Council Guam EHDI Family Support Group Guam Homeless Coalition Guam Housing & Urban Renewal Authority Guam Identifies FamiliesÕ Terrific Strengths (GIFTS) Guam Interagency Coordinating Council Guam Legal Services Corporation - Disability Law Center Guam Legislature Guam Medical Society Guam Memorial Hospital Authority Guam Office of Minority Health Guam Positive Parents Together Guam Regional Transit Authority Guam Salvation Army Guam Surgicenter Guam Veterans Affairs Office Head Start Judiciary of Guam MayorsÕ Council of Guam Office of the Attorney General of Guam Office of the Governor Office of the First Lady Office of the Lieutenant Governor Office of the Public Guardian National Association of Social Workers, Guam Chapter Pacific Islands Micro Credit Institute Parents Empowering Parents, Inc. (PEP, Inc.) Supreme Court of Guam Sagua Ma–agu Birthing Center Si–A: Self-Advocates in Action Small Business Development Center State Vocational Rehab Council U.S. Naval Hospital, Guam Educational Developmental Intervention Services Victim Advocates Reaching Out 22 On January 15, 2015, the Guam ÒNo Wrong DoorÓ team met with members of the Kokua Kalihi Valley Comprehensive Family Services Ð Elder Care staff at the Gulick Elder Center in the heart of residential Kalihi. (L-R) seated: Janet Cruz, Medicaid; Ben Servino, DISID; Arthur San Agustin, DSC; and Melvin Cruz, DSC. Standing (L-R): Ginger Porter, Guam CEDDERS; two Gulick staff members (standing); Nanay Padua; staff member; and Merlita Compton, MPH, Program Director. Other Collaborators American Academy of Pediatrics American Samoa Department of Education Association of Assistive Technology Act Programs Bill Daniels Center for ChildrenÕs Hearing, ChildrenÕs Hospital, Colorado ChildrenÕs Hospital Los Angeles Boystown Center for Deafness Center for Applied Special Technology Center for Assistive Technology Act Data Assistance Commonwealth of the Northern Mariana Islands Public School System Community Transportation Association of America Council for Chief State School Officers Federated States of Micronesia Department of Education HawaiiÕs Early Childhood Comprehensive Project Hawaii Executive Office on Aging ICF Macro Interstate New Teacher Assessment & Support Consortium Keystone Alternate Assessment Design Mid-continent Research for Education & Learning, Colorado National Asian American Pacific Islander Mental Health Association (NAAPIMHA) National Association for the Education of Young Children National Center and State Collaborative National Child Care Information & Technical Assistance Center National Early Childhood Technical Assistance Center National Federation of Families for ChildrenÕs Mental Health National GovernorÕs Association National Infant & Toddler Child Care Initiative @ Zero to Three National Information System for Assistive Technology (NISAT) National Instruction Materials Accessibility Center National Instructional Materials Accessibility Standards, TA Center Republic of the Marshall Islands Ministry of Education Republic of Palau Ministry of Education Rehabilitation Engineering and Assistive Technology Society of North America Substance Abuse and Mental Health Services Administration Technical Assistance Partnership for Child and Family Mental Health U.S. Department of Defense WestEd (Doing What Works) 23 The Guam CEDDERS Team Teaching, Research, Outreach, & Administrative Staff Heidi San Nicolas, PhD Director & Professor Maria Luisa D. Benavente, ACSW Project Kari–u CLC Coordinator Margaret G. Blaz, PhD Guam EHDI Follow-Up Coordinator Vera Ann G. Blaz, MA Training Associate Bonnie Brandt, MA Training Associate Julie Celeste, MBA Administrative Manager June De Leon, MEd Associate Director for Program Development, Technical Assistance, & Outreach Elaine Eclavea, MEd Health, Wellness, & Prevention Initiative Area Coordinator Terrie Fejarang, MEd Associate Director for Interdisciplinary Training, Operations, & Data/Dissemination Nieves Flores, EdD Associate Professor Training Associate Charlita Harper, MEd Training Associate Sean Lizama, BA Disability Media Specialist Joseph Mendiola, BA Data Coordinator Teresita Naputi, BA Research Associate Jeffrey Pinaula, BA Research Associate Ginger Porter, MEd Instructor, Disability Studies, Interdisciplinary Evaluation & Research June Quitugua, MEd Inclusive Communities Initiative Area Coordinator Victoria Ritter, BA Guam EHDI Hearing Screening Technician Carla Torres, MEd, ATP Assistive Technology & Special Projects Program Coordinator Keith Villaluna, BBA Data Coordinator Trish Billen Practicum Student & Disabilities Studies Intern Support Staff Leah Grace Abelon, BA AT Center Assistant Lesley Abonales Student Research Assistant Jenika Ballesta Student Office Assistant Jessica Chaco Follow up Parent Mentor Dolores Cruz Grant Budget Specialist III Coleen V. Dela Cruz Grant Assistant I Charlayne Espinosa Student Office Assistant Sherolyn Guerrero, BIT Grant Assistant I Andrew Gumataotao Student Office Assistant Margaret Johnson, AS Data & Developed Products Assistant Leilani Lafaele Office Technician Ruth Leon Guerrero Office Technician Jef Limtiaco Grant Assistant III Dolores Palomo AT Grant Assistant Thilani Pereda Office Technician Lance Santos Student Office Assistant Tanya Santos, AS Grant Assistant I Bernadette Shisler Family Interviewer June Timpe Grant Budget Specialist I Marie Wusstig, MEd Family Interviewer Funding July 1, 2014 through June 30, 2015 Local 38% $3.1 Million Federal 41% $3.4 Million Other 18% $1.5 Million 3% State $220,000 $8,314,699 24 University of Guam Center for Excellence in Developmental Disabilities Education, Research & Service 2015 Annual Report July 1, 2014 - June 30, 2015 This report was produced with 100% funding support from the U.S. Department of Health & Human Services, Administration on Intellectual and Developmental Disabilities, Grant No. 90DD0014-02-00 and facilitated by the University of Guam Center for Excellence in Developmental Disabilities Education, Research, and Service (Guam CEDDERS). This report is also available online and in alternate formats at www.guamcedders.org. The University of Guam is an equal opportunity provider and employer.