Guam CEDDERS Newsletter June 30, 2023 Volume 25, Issue 3 29th Annual GSAT Conference In this issue: 29th Annual GSAT Conference........1-3 28th Annual GSAT Expo....................4-5 SW Practicum Fair..................................6 SW Intern Reflections...........................6 Guam EHDI Website Award.................7 Guam EHDI Check Me Out Fair.........8-9 Guam EHDI Quarterly Highlights.....10 FSM Project LIFT............................11-12 GDOE Math Professional Learning.13-14 DPHSS SARS CoV-2 Virus Summit.15-17 Post-Mawar Initiative..........................15 CEDDERS Welcomes New Staff..........20 UNIVERSITY OF GUAM Center for Excellence in Developmental Disabilities Education, Research, and Service On April 21, Keynote Speaker Ray Barcinas shares his story with participants at the 29th Annual GSAT Conference. The University of Guam Center for Excellence in Developmental Disabilities Education, Research, and Service (Guam CEDDERS) in collaboration with tri-agency partners Guam Legal Services Corporation-Disability Law Center (GLSC-DLC) and the Guam Developmental Disabilities Council (GDDC) hosted the 29th annual Guam System for Assistive Technology (GSAT) Conference, “Raising the Bar: Live, Work and Play with Assistive Technology,” on April 21 at the Hilton Guam Resort Micronesian Ballroom. Over 160 individuals participated in the event. Advisory Council Chairperson Lourdes Ann Mesa welcomed the audience and recognized agency participants. Ray Barcinas, a blind self-advocate, gave the keynote speech. Mr. Barcinas impressed the audience with his humor, expertise, and unwavering perseverance. He shared how people born with or have acquired a disability are trapped in a prison of circumstances, coupled with the struggles of everyday life. “Being blind, you have to work around people’s schedules. Raising the bar for the people in a prison of circumstances, sometimes mean raising the bar so high that you can walk under it, you can escape that prison of circumstances. Difficulties can be overcome and assistive technology can help you do that.” If Mr. Barcinas had a Braillenote with the screen reader software in elementary school, a plethora Continued on Page 2 of information would have opened up. Instead, he had a machine that when you typed, you had to take the paper that you typed on and send it to the special education office. The Braille translation would come back a week later and submitted to the teacher. The cycle would repeat for every assignment. Those translating his work could not keep up, but that was the only AT available to him at the time. Now when he writes something, teachers, parents, and students can see what he writes in seconds. “Raising the bar means being a better you than you were yesterday.” Three informative sessions followed the keynote speech. The first session was facilitated by Michelle Bengco, Sustainability and Social Impact Manager at Bank of Guam. She spoke on the topic of financial literacy, cybersecurity, and banking features for individuals with disabilities. The second session featured presenters from the Guam/ Micronesia Geriatrics Workforce Enforcement Program. The team of professionals include Veronica Alave, Dr. Annama Varghese, Dr. Delores Lee, Nikolas Gutierrez, and Rhoda Orallo. The team presented an overview of dementia and advanced care planning and support for family caregivers. 100 packets on dementia were disseminated to the participants. The last session was composed of presenters from the community, transportation, employment, and recreation. Ken Ka’ai spoke about the services offered by the Catholic Social Service Community Habilitation Program. Andria Macaraeg presented on the no tech, low tech, and medium tech options for engaging children in sports and recreation. Vocational Rehabilitation Counselor Alvin Ancheta discussed services offered at the Division of Vocational Rehabilitation. Former Assistive Technology Specialist and Director of Department of Integrated Services for Individuals with Disabilities Ben Servino introduced the newly established, “Accessible Van Transportation Services.” University of Guam Social Work Interns Amarah Santos and Yeong Sook Park developed a video on, “Online Shopping to Promote Independence,” which was shown between sessions. The video highlighted Island Choice Grocery, a local online shopping option for individuals who are unable to physically go to the store. The video featured the store’s mobile application and website of available services which gives shoppers the ability to shop in the comfort of their home. 29th Annual GSAT Conference (cont.) GSAT Advisory Council Chairperson Lourdes Ann Mesa delivers her welcoming remarks. Participants ask the presenters questions during various sessions at the 29th Annual GSAT Conference. 29th Annual GSAT Conference (cont.) University of Guam Assistant Professor of Nursing Dr. Annama Varghese (left photo) and Dr. Delores Lee (right photo) present on dementia and advance care planning. CEDDERS Research Associate Cullen Pinaula demonstrates the Pocketalker, an amplification device, to a conference participant. Disability Advocate Maria Pineda greets Ray Barcinas, self-advocate and conference keynote speaker. Veronica Alave, Guam/Micronesia Geriatrics Workforce Enforcement Program holds up materials to help individuals with dementia. 100 kits were given away during their session. Michelle Bengco, Bank of Guam Sustainability and Social Impact Manager, provides tips on cybersecurity, financial literacy, and banking features for individuals with disabilities. 28th Annual GSAT Expo On April 29, GSAT receives recognition for its collective efforts in the field of assistive technology. Senator Roy Quinata presents the legislative resolution during the GSAT Expo at the Micronesia Mall. (pictured front row L-R): Reuel Drilon, Marie Wusstig, Leah Abelon, Senators Roy Quinata and Jesse Lujan, Patricia Perez, Cullen Pinaula, and Tanya Simer; (back row L-R): Toby Babauta, Zachary Hecita, Chaz Nangauta, Jenna Almoguera, Yeon Sook Park, UOG Social Work Intern; and Jeannie Hollis, ASL Interpreter. Social Work Intern Yeon Sook Park talks with an Expo participant about AT devices available at GSAT. GSAT Advisory Council member John Valentine entertains the crowd with his gift of music. 28th Annual GSAT Expo (cont.) GSAT Advisory Council Member at Large Enrique Mesgnon shares about the GSAT Advisory Council. Student Office Assistant Toby Babauta assists with survey dissemination as participants exit the Expo. UOG Social Work Interns Yeon Sook Park and Amarah Santos demonstrate an assistive technology device on stage for Expo participants. GSAT Center Assistant Patricia Perez demonstrates the Upwalker to an Expo participant. Disability Advocate Gina Arca smiles as she tries the Upwalker. American Sign Language (ASL) students, led by GCC Instructors Kirsten Rosario and Nathan Manibusan, perform a song in ASL. CEDDERS Participates in Practicum Fair On April 26, representatives from Guam CEDDERS participate in the Social Work (SW) Practicum Fair at the University of Guam. Current SW interns presented a comprehensive overview of the services and supports offered by GSAT and the Guam EHDI Project. Pictured standing L-R: Amarah Santos and Jessica Cepeda, Social Work Interns; Leah Abelon and Tanya Simer, Field Instructors, Guam CEDDERS. UOG SW Intern Reflects on Experience During my practicum at Guam CEDDERS, I had the opportunity to work with two important programs, Guam EHDI and GSAT. The Guam Early Hearing Detection and Intervention (EHDI) program is responsible for identifying hearing loss in newborns and young children and making sure that they receive the necessary interventions and support services as early as possible. The Guam System for Assistive Technology (GSAT) program is responsible for providing individuals with disabilities access to assistive technology devices and services that can help them improve their daily living skills, independence, and overall quality of life. Through my involvement with GSAT, I gained valuable knowledge and skills related to assistive technology devices and services, including how to assess individual needs and recommend appropriate devices. I witnessed firsthand how access to assistive technology devices and services can make a significant impact on an individual’s life, increasing their independence, and enhancing their overall well-being. Overall, my practicum experience with GSAT was incredibly enriching, both personally and professionally. It solidified my passion for working in the disability services field, and I am grateful for the opportunity to have worked with such dedicated professionals who are making a positive difference in the lives of individuals with disabilities in Guam. Young Sook Park, BSW, University of Guam, Class of 2023 Guam EHDI Receives Outstanding Website Award Three Guam EHDI staff and a parent representative attended the 2023 EHDI Annual Meeting in Cincinnati, Ohio from March 4 – 8. The goal of the annual meeting is to enhance the implementation of comprehensive state-based Early Hearing Detection and Intervention (EHDI) programs. On March 7, the Guam EHDI Team was presented with the Outstanding Website Award - 2023 Champion of Previous Winners, at the Poster and Website Award Presentation. Guam EHDI previously won the EHDI Website Award in 2018. The Guam CEDDERS media specialists and EHDI staff of past and present worked diligently to ensure content is updated promptly and the information is available for various stakeholders. To learn about the newborn hearing screening process, visit our website at guamehdi.org. Michelle Aguigui, Guam CEDDERS Associate Director and Guam EHDI Project Director; Keith Villaluna, Guam CEDDERS Interoperability Data Manager; and Marie Wusstig, Guam EHDI Project Coordinator, pose with the Guam EHDI Website Award. Michelle Aguigui, Guam CEDDERS Associate Director and Guam EHDI Project Director (pictured left) looks on as Marie Wusstig, Guam EHDI Project Coordinator (pictured at podium) speaks during the award presentation at the EHDI Annual Meeting. Guam EHDI Check Me Out Fair On March 25, Guam Early Hearing Detection and Intervention (Guam EHDI) and Guam Department of Education (GDOE) Early Childhood Special Education (ECSE) Preschool, and Guam Early Intervention System (GEIS) partnered to bring the “Check Me Out Fair” back to the community. The fair aimed to share the importance of developmental screening, monitoring, and ensuring children are developing on track. The event was held at the Micronesia Mall from 11 am to 2 pm for families of children birth to five years old and were provided free developmental screening, hearing screening, and health checks from GDOE GEIS and ECSE Preschool, Department of Public health and Social Serivces (DPHSS), Project Bisita I Familia, and Guam EHDI. The DPHSS Preschool Development Grant Birth to 5 (PDG B-5) provided families with incentives after their child completed the developmental screen. Sixty-nine families participated in the event. Referrals were made to respective programs. Guam EHDI looks forward to future collaborations with partner agencies to spread awareness of the importance of developmental screening and early identification of children with special educational and healthcare needs. On March 25, Guam CEDDERS Research Associate Tanya Simer (standing right) with the Guam EHDI Program assists a parent and child with some assistive technology devices during the “Check Me Out Fair.” Guam EHDI Check Me Out Fair (cont.) On March 25, Guam Department of Education (GDOE) Early Childhood Special Education (ECSE) Preschool “Crew” patiently wait for parents at the exit stations at the “Check Me Out Fair.” On March 25 , GDOE Guam Early Intervention System (GEIS) staff assist families with completing the Ages & Stages Questionnaire (ASQ) at different age stations during the “Check Me Out Fair.” Guam EHDI Shares Quarterly Highlights On March 18, the Guam Early Hearing Detection and Intervention (EHDI) Project invited parents of children identified with hearing loss to the last of a three-part series of EHDI Conversations. The final session focused on the lived experiences of Tina Artero, a Deaf/Hard-of-Hearing (D/HH) adult who shared her knowledge of navigating and accessing community services on the island. ICAN Resources employs Tina, who has worked at the Department of Defense Education Authority (DODEA) Guam High School since 2021. Tina also learned to navigate the Washington D.C. Metro at the age of 14 while living in the area. She earned her Guam Driver’s License at the age of 18 and uses the Guam Regional Transit Authority (GRTA) occasionally. Also present was Dr. Renee Koffend, Guam EHDI audiologist consultant, who provided parents and childcare providers with an overview of the importance of continuously monitoring a child’s hearing health from birth to 21 years to ensure children achieve optimal speech, language, and social emotional skills necessary to communicate and interact with family, friends, and members in the community. Michael Gallo, Program Coordinator with the Guam Department of Public Health and Social Services (DPHSS) Medicaid Program, provided an overview of the available services, eligibility requirements, and application process. On March 5 and 17, Guam Memorial Hospital Authority (GMHA) and DPHSS Project Bisita I Familia staff received Newborn Hearing Screening Training from Dr. Koffend. Ten GMHA staff and 11 DPHSS staff were trained on the hearing screening processes, troubleshooting hearing screening equipment, daily maintenance of hearing screening equipment, and best practices of infant hearing screening techniques. The Guam EHDI Project continues to provide the much needed outpatient follow-up hearing rescreens for babies who referred (failed) the initial hearing screening test provided at GMHA before discharge. Guam EHDI screened 45 babies from March through May; of the babies screened, 36 passed and 9 referred. The staff provided the hearing screening results to assist the primary care physician (PCP) in determining the following steps upon the child receiving a refer result. The PCP plays a critical role in the timeliness of receiving DAEs. A referral from the PCP to the audiologist for a diagnostic audiological evaluation (DAE) will ensure the child gets a diagnosis by three months of age. In addition, the project connects parents to a family support group upon receiving consent from the parent. Guam EHDI and its partners are committed to achieving the Joint Committee of Infant Hearing (JCIH) 1-3-6 hearing screening guidelines: z Hearing screening by 1 month of age; z Diagnostic Audiological Evaluation by 3 months of age; and z Baby with hearing loss enrolled in early intervention services by 6 months of age. To learn more about newborn hearing screening, visit our website at guamehdi.org. On March 18, guest presenter Tina Artero, Guam EHDI Advisory Committee Co-Chairperson and D/HH advocate (pictured on the left), shares with parents, childcare providers, and consumers about the individuals in her life who are part of her support system. Ms. Artero was the main presenter for the EHDI Conversation on Community Living. FSM Provides Support to Project LIFT Coaches From April 5 -11, the Federated States of Micronesia (FSM) National Department of Education (NDOE) in partnership with Guam CEDDERS and Sigma Associates Incorporated provided on-site support to Project Literacy Intervention for FSM Leaders of Tomorrow (LIFT) Technical Assistance & Training coaches. The five-day event was held in Yap and was comprised of Project LIFT coaches from Pohnpei, Yap, Kosrae, and Chuuk. Part of the technical assistance involved observations of the Yap Project LIFT model school as well as focus group sessions with Project LIFT teachers in Yap and Project LIFT coaches. In addition, a three-day training on progress monitoring and the Early Literacy Monitoring (ELMo) software was also conducted with the coaches. The training was facilitated by Josephine Cruz, Ed.D., Guam CEDDERS; and Tri Tran and Arlene Russell, Sigma Associates Inc. The on-site training and technical assistance provided participants with increased knowledge and skills in progress monitoring and the use of ELMo. Furthermore, facilitators were able to collect valuable information from teachers and coaches related to the professional learning needs of personnel in Project LIFT schools. On April 6, Project LIFT coaches from Yap worked together on a sorting exercise during the Progress Monitoring and ELMo training. FSM Provides Support to Project LIFT Coaches (cont.) On April 6, Project LIFT coaches worked together in their State teams on a sorting exercise during the Progress Monitoring and ELMo training. GDOE Provides Math Professional Learning On April 10, Dr. Alicia Aguon, Math Professor and Dean of the School of Education at University of Guam, facilitates the math professional learning session held at the Westin Resort Guam. On April 10, the Guam Department of Education, in collaboration with Guam CEDDERS, supported the State Systemic Improvement Project (SSIP) target schools in a K-3 math professional learning session held at Westin Resort Guam. The session was facilitated by Dr. Alicia Aguon, Math Professor and School of Education Dean at the University of Guam. The SSIP math professional learning session was part of the continued support and technical assistance in the use of math manipulatives to deliver evidence-based practices in math instruction. Initially, math manipulatives were delivered to K-3 and resource room teachers at the start of SY 2022-2023 and additional math materials such as dice, cards, and two-color counters were delivered to the schools after the session was completed. The four SSIP target schools that participated were Chief Brodie Memorial Elementary School, J. M. Guerrero Elementary School, Capt. H. B. Price Elementary School, and M. U. Lujan Elementary School. All Kindergarten through third grade teachers and special education teachers, SSIP instructional coaches, and SPED coaches participated in the session. The session gave teachers continued support in the use of strategies for students struggling with mathematical concepts and operations in the elementary grade levels. Through their participation in this session, teachers were able to apply knowledge and skills in teaching number foundations, place value, and the concepts of addition and subtraction in an effort to improve students’ overall proficiency in mathematics. Photos on page 14 GDOE Provides Math Professional Learning (cont.) Assorted pictures from the professional learning session highlight the SSIP Target Schools’ K-3 and resource room teachers, instructional coaches, and SPED coaches engage in dialogue and evidence-based math practices that incorporate math manipulatives to build students’ understanding of mathematical concepts and support their application of these concepts. DPHSS Facilitates SARS CoV-2 Virus Summit Guam CEDDERS facilitated a three-day summit from April 5th – 6th and April 12th with Government of Guam entities and other stakeholders to gain feedback on measures adopted, or not, for persons with disabilities for the containment, mitigation, or suppression of the SARS CoV-2 virus. The summit was funded by the Guam Department of Public Health and Social Services (DPHSS) through an award granted by the Association of State and Territorial Health Officials (ASTHO). On Day 1, using the Areas of Emphasis defined in the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (Figure 1 on page 12) as the framework to guide discussions on what worked, participants had the opportunity to share accomplishments in the continuance of services through the implementation of new, or modifications of existing, processes and procedures during the COVID-19 pandemic. On Day 2, participants discussed what did not work in areas that should have received more attention during the pandemic to better meet the needs of persons with disabilities, including older adults. Prioritizing the Areas of Emphasis, group consensus was reached identifying the areas of Education, Health, Employment, Housing, and Community Supports as the top five areas for improvement. Day 3 of the summit provided a recap of the discussions from the previous two sessions that cultivated collaborative engagement dedicated to future planning on creating an effective, inclusive, and crises-ready community. Four recommendations identified include the review of current operational processes and procedures, development of comprehensive crisis plans, establishment of consistent and formal interagency collaborative sessions, and development of rights-based policies. Guam CEDDERS was invited to share results on a national platform through ASTHO’s webinar series scheduled on July 18th. On April 5, Terry G. Aguon, Deputy Director, DPHSS, addresses participants with welcoming remarks and setting expectations. Joey Manibusan, Captain, Guam Fire Department (right) shares the role of the fire department in supporting services to persons with disabilities and those suffering from homelessness, while Esther Figir, Department of Environmental Health, DPHSS, (left) listens. Continued on page 16 DPHSS Facilitates SARS CoV-2 Virus Summit (cont.) Figure 1: Developmental Disabilities and Bill of Rights Act of 2000 DPHSS Facilitates SARS CoV-2 Virus Summit (cont.) Gerard Toves, Deputy Director, Guam Department of Labor, shares the top five Areas of Emphasis identified by his group during a large group session at the Summit. Tom Babauta, Superintendent of Special Education, Guam Department of Education addresses questions from participants on challenges faced by the department resulting from the pandemic. Heidi Lujan, Administrator, DPHSS Division of Children’s Wellness; Mae Japitana, Teacher, Mercy Heights Nursery and Kindergarten; and Liz Napoli, Executive Director, Guam Housing and Urban Renewal Authority, participate in table discussions during the Summit. CEDDERS Participates in Post-Marwar Initiative On May 24, Guam was hit by Typhoon Mawar, the strongest typhoon to devastate Guam in over 20 years. The Region IX Federal Emergency Management Agency (FEMA) team responded immediately and mobilized resources to assist in post-typhoon recovery. One of FEMA’s post-typhoon recovery initiatives was to form a Priority Population Task Force and meet with local partners weekly to discuss ways to assist individuals with disabilities, senior citizens, and their families. These partners included FEMA, Guam Developmental Disabilities Council (GDDC), Guam Legal Services Corporation – Disability Law Center (GLSC-DLC), Department of Integrated Services for Individuals with Disabilities (DISID), Office of Homelessness and Poverty Prevention (OHAAP), Department of Public Health and Social Services - Division of Senior Citizens (DPHSS-DSC), Autism Community Together (ACT), Guam Parent Training & Information Program (PTI), Guam Behavioral Health and Wellness Center (GBHWC), Guam Regional Transit Authority (GRTA), and Catholic Social Services (CSS). The Priority Population Taskforce was initially coordinated with the Region IX FEMA Regional Disability Integration Specialist Roxann Crawford and was later led by Disability Integration Advisor Lead Matthew Star. With support from DPHSS-DSC, CEDDERS took part in the post-typhoon recovery initiative and extended the 311 Option 2 Call Center to help those who were seeking assistance due to damages caused by Typhoon Mawar. CEDDERS assisted individuals with online FEMA applications, provided information for services from various entities such as debris disposal sites and shelters, connected with village mayor’s offices and AmeriCorps for debris removal assistance, and fielded general inquiries about D-SNAP, Guam Power Authority, Guam Water Authority, Small Business Administration Recovery Centers, and services provided by the Guam System for Assistive Technology (GSAT). Additionally, GSAT provided assistive technology equipment to the Astumbo Shelter as well as clients who inquired about damages to their assistive technology devices/equipment. The Priority Population Task Force Team had their weekly meeting for updates with local partners on post-Mawar initiatives. Pictured first row (L-R): Matthew Star, FEMA Disability Integration Advisor (Facilitator); Michelle Aguigui, Associate Director, and Cullen Pinaula, Research Associate, Guam CEDDERS; Martha Moore, FEMA Civil Rights Analyst; Güen, Sign Language Interpreter. Second row (L-R): Mae Fe Muyco, GLSC-DLC; Vicky Arriola, Parent, PTI; Marina, Sign Language Interpreter; Myra Aguon, DHH Self- Advocate. Third row (L-R): Josephine Blas, President, ACT; Christel Lawrence, FEMA; Jesse Libby, Project Director, GBHWC; Sheryl Chambers, FEMA. Fourth row (L-R): Kathrina Bayson, DPHSS-DSC; Jermaine Alerta, Executive Director, GDDC; Anne Anulao, Program Coordinator, DISID. 22002233Silebra I Famagu’onSaturday - September 23, 202311:00am – 4:00pmMake-It and Take-It ActivityInteractive Song & DanceColoringTable Displaysand so much moreSilebra I Famagu’onFunding for this ad provided by the U.S. Department of Health and Human Services – Health Resources and Services Administration, Grant number: 6 H61MC24883-11-01. University of Guam is an Equal Opportunity Employer. Celebrate the Children CEDDERS Welcomes New Staff Jenna Noelle Almoguera STUDENT OFFICE ASSISTANT Major/Minor Business Administration, Public Administration Hobby Volleyball, Dancing My future goal is to travel the world. Thilani (Tia) Pereda GRANT ASSISTANT I Major/Minor Computer Science, Cybersecurity Hobby Design, photography, and videography Welcome back to Guam CEDDERS, Tia! I Tellai is a quarterly publication of Guam CEDDERS. Interim Director: June De LeonEditor-In-Chief: Vera BlazEditors: Michelle Aguigui & Josephine CruzLayout: Zachary Hecita This issue of I Tellai was made possible by contributions from the following Guam CEDDERS staff members: Leah Abelon, Michelle Aguigui, Josephine Cruz, June De Leon, Reuel Drilon, Rachel Duenas, Cullen Pinaula, Keith Villaluna, Debra Whit, and Marie Wussttig; and guest contributor Yeon Sook Park. Contact Information Mailing Address:Guam CEDDERS Service Center: Guam CEDDERSTel: (671) 735-2480/1Office of Graduate Studies,Fax: (671) 734-5709Sponsored Programs, & TTY: (671) 734-6531ResearchUniversity of Guam303 University DriveMangilao, Guam 96913 For alternative formats (e.g. Braille or large print), please contact the Guam CEDDERS Service Center. For more information on any of these events, please call 735-2479 or visit www.guamcedders.org This newsletter was produced with 100% funding support from the U.S. Department of Health & Human Services, Administration on Intellectual and Developmental Disabilities, Grant No. 90DDUC0064-02-01 and facilitated by the University of Guam Center for Excellence in Developmental Disabilities Education, Research, and Service (Guam CEDDERS). This report is also available online and in alternate formats at www.guamcedders.org. The University of Guam is an equal opportunity provider and employer.